EPISODE 229 [INTRODUCTION] [0:00:00] MD: The next on the list in our gratitude journal entry, this moment of gratitude goes to a review written by New York Peds SLP, so NY Peds SLP. This individual shared that this is their new go-to. ÒSo happy I found this podcast. There is such a wide variety of information and guests for the research-hungry pediatric SLP. Michelle and Erin are so joyful. You can tell how much they care about our field. I can't wait to see what else they have in store.Ó Thank you. Thank you for getting it. We all want to do better, but we don't have access to research as quickly as some of our colleagues, because enjoying a research article oftentimes requires us to pay for access, right? That's not in all of our budgets, but we still want to do the best that we can, and that's all-todayÕs guest. Today's guest is none other than Dr. Michelle Therrien from FSU. She is a researcher on building friendships for children and adults with disabilities that are AAC users. You all, this is like the missing link. It's the best of floor time meets AAC with a little bit of psychology and hope tossed in. It's how do we help our students and our patients build a meaningful play connection and they use AAC? NYPs SLP, thank you for sharing our passion and research and joining us as we try to be that bridge in the research to practice and make research accessible for everybody. Also, on that note, you all go check out her lab on Facebook page. It's called AAC Connect Lab. Happy gratitude. [0:02:12] MD: Hi, folks. Welcome to First Bite: Fed, Fun and Functional. A speech therapy podcast sponsored by SpeechTherapyPD.com. I am your host on this nerd venture, Michelle Dawson, MS, CCC-SLP, CLC, the All-Things PFDs SLP. I am a colleague in the trenches of home health, early intervention right there with you. I run my own private practice, Heartwood Speech Therapy here in Columbia, South Carolina. I guest lecture nationwide on best practices for early intervention for the medically complex graduates. First BiteÕs mission is short and sweet, to bring the light, hope, knowledge and joy to the pediatric clinician, parent, or advocate. [0:02:32] EF: By way of a nerdy conversation, so there's plenty of laughter, too. [0:02:36] MD: In this podcast, we cover everything from AAC to breastfeeding. [0:02:41] EF: Ethics on how to run a private practice. [0:02:44] MD: Pediatric dysphagia to clinical supervision. [0:02:47] EF: All other topics in the world of pediatric speech pathology. Our goal is to bring evidence-based practice straight to you by interviewing subject matter experts. [0:02:56] MD: To break down the communication barriers, so that we can access the knowledge of their fields. [0:03:02] EF: Or, as a close friend says, ÒTo build the bridge.Ó [0:03:05] MD: By bringing other professionals and experts in our field together, we hope to spark advocacy, joy and passion for continuing to grow and advance care for our little ones. [0:03:16] EF: Every fourth episode, I join them. I'm Erin Forward, MSP, CCC-SLP, the Yankee by way of Rochester New York transplant who actually inspired this journey. I bring a different perspective, that of a new-ish clinician with experience in early intervention, pediatric acute care and non-profit pediatric outpatient settings. [0:03:37] MD: Sit back, relax and watch out for all hearth growth and enjoy this geeky gig brought to you by SpeechTherapyPD.com. com. [INTERVIEW] [0:04:19] MD: Okay, everybody. Today's guest, I am kind of geeking out on because I was incredibly socially awkward around the first time that we met. I couldn't believe she was sitting caddy corner, and I was like, ÒMichelle, play it cool. Michelle, play it cool.Ó Also, we're talking about social skills and relationships today, so of course, I geeked out with her. I have none other than Dr. Michelle Therrien, and I'm hoping to God I said your last name right? You all, she is the researcher with AAC Connect Lab. She's an assistant professor in the School of Communication Sciences and Disorders at Florida State University, and her lab focuses on building connections and making relationships like, building friendships, but from the perspective of individuals across the life continuum that have disabilities and use AAC. I mean, Erin's first or second love in the world of Speech Pathology is making connections. But how we do that for the little ones, and the big ones but we talk about the little ones here, that have an AAC device, and she was right there. We met at Ð I didnÕt even say where we met. I get so excited. We met at the ASHA Planning Committee, because she is one of the topic chairs for ASHA 2023 in Boston. Dr. Michelle, thank you for coming on. [0:05:41] MT: Thank you so much for having me. [0:05:43] MD: Yes. I hope I wasn't as awkward as I think that I was. Yay, social anxiety. [0:05:49] MT: ItÕs fine. IÕm right there with you. [0:05:52] MD: Okay. I mean, we all have our little niche areas within the world of Speech- Language Pathology. Can you talk about your journey as a Speech Pathologist and how you found this area as a researcher? Then how you became the topic chair, because you're the topic chair of autism, right? No, it's AAC. [0:06:15] MT: Yes, AAC. [0:06:17] MD: Yes. It was one of the A's. There were a lot of tables and name tags at the convention planning. Take us to the beginning. What made you want to do all of this? [0:06:25] MT: This is actually a hard question, because I'm not actually an SLP. That was not how I was trained. I went to college for the first time, and my major was English literature. I always said that my ideal job would be getting paid to read. Unfortunately, that's not actually a job. I had to figure out what I wanted to do with it. I was a teacher for a little while, middle school English. [0:06:55] MD: Oh, my God. [0:06:57] MT: I decided that was not what I wanted to do. I did love the children. However, I just, yeah, it was not for me. [0:07:03] MD: Okay, on that note, Mrs. Peterson, my seventh grade English teacher from Gayle Middle School, if you're listening. I am sorry, because seventh grade and 13-year-olds are hard. Mrs. Peterson deserves an award. Also, she was going through menopause, and I remember her having hot flashes and dripping sweat back in the day with like and just standing in front of seventh period, 13-year-olds like, they did not pay that woman enough. Also, wait, I do want to know, whoÕs your favorite author? [0:07:34] MT: I hate favorite questions, because I have such a hard time with them. I don't know. I used to say John Steinbeck, but I haven't read Steinbeck in a really, really long time. I pretty much like, I don't know. I read very broadly. I just like good stories. I don't even have particular genres that I go for. It's like Ð [0:07:58] MD: I'm on an Agatha Christie kick with Hercule Poirot. [0:08:02] MT: I think, yeah. [0:08:04] MD: Yeah. I'm like, the quirky little man with the mustache that always solves Ð it's like the OG murder mysteries from back in the day. Yes. Okay, continue. You decided that maybe teaching 13-year-old prepubescent children was not the right route. [0:08:18] MT: Not the right route, correct. I am married to a pediatric physical therapist. We, In our spare time when we weren't working, volunteered with an organization in St. Louis, Missouri called the Disabled Athletes Sports Association. Shout out to Kelly Behlmann, who founded that organization. My first experience with AAC ever, was one of the athletes used AAC. I was just what like, ÒWhat is this? This is so cool.Ó My first reaction, right, is, ÒThis is so cool.Ó Then as the years have passed, I've been like, ÒOh, but it's also so limiting. I want to figure this out.Ó Like both things are true. I floundered for a little while like, ÒHow am I going to do this? I'm not an SLP. I didn't study that. I don't know where to go from here.Ó I ended up getting a master's degree in computational linguistics. [0:09:14] MT: What? What is that? [0:09:16] MD: It's like the intersection of computer science and linguistics. It's a lot about how computers can understand human language and translate. It's like the translation between computer language and human language. People who have that degree work on things like speech recognition or AI things related to speech. It was fascinating. I did take some of the classes that SLPs take like phonetics and I learned about sound waves and all this stuff, but I never took it from the clinical angle. It was more this teaching computers how to do that angle. I thought that I would then work on design of systems. That turned out to not be where my heart lay, either. I was not happy only working with computers. I wanted to be with people. Again, a crisis of like, ÒWhat am I going to do with my life?Ó Then in the middle of the crisis, I took a job as a therapy aide at a pediatric clinic. I did some cutting out of things like sensory letters and laminating things for people, but in the process of doing that, I spent a lot of time with SLPs, OTs, PTs, psychologists like, the whole gamut of pediatric therapeutic services. I learned a lot from just observing. An amazing amount I feel like, like around people who do that can just teach you so much. As I was in that job, I recognized that there were many kids, it was a center that was particularly for kids with autism diagnoses. We had some other kids there, but generally that was the majority. I noticed a need for something besides just working on speech, which is what I mostly saw happening. Couldn't they have some other option to get what they want to say out? Keep working on speech, of course, but like, what about now? What about now when speech is so hard? Can we give them an option? I wrote a proposal to start an assistive technology program there. [0:11:37] MD: You just casually wrote a proposal. Oh, my God. I love you. That is like, I mean, in one breath, complain about a situation, recognize there is an issue in the next breath. Let's save the world. I love that. Okay, continue. Casually wrote a proposal. This was like? [0:11:55] MT: I don't know what year. A little bit before 2010. It was when iPads were new and no one really knew that they could be a therapeutic tool. We called our assistive technology program, I Learn. We just like, brought in the iPads and brought in iPod touches, which I don't get anymore. Yeah, we just started doing it. I did a lot of self-study into research so that I was doing things that were soundly, grounded in science in some way. I don't remember how long I did that, but I remember getting to a point where I was like, ÒOkay, I don't know what to do anymore.Ó Like, the answers to my questions, I cannot find by searching the research. Again, on a little bit of a limb like the proposal writing, I applied to a doctoral program. [0:12:54] MD: Your husband must be of the same genre of mine. [0:12:59] MT: I had no sense of what it meant to get a PhD, really. It was more like I had questions and these people seemed like they probably could help me figure these questions out. Also, I don't know if I really want to do this, but if I get in, I'll deal with it then. I'll answer the question of if I really want this then. [0:13:23] MD: Where did you go for your PhD? [0:13:26] MT: I was lucky to get my PhD at Penn State on the AAC Leadership Project, which was a grant funded by the US Department of Ed. That project has been going, I don't know how long. I'm the worst person for remembering all these details, but it has been going since before I was there and it is still going today. You get to work with Janice Light and David McNaughton and Krista Wilkinson and Kathy Drager; people who have been studying this for a long time and who are really experts in the field. It was quite an experience. so that brought me here, I guess. I don't know if I answered your question, but I gave you a long answer. [0:14:14] MD: Everybody's walk is unique and it helps us know, like, I love learning about a speaker at the start of a course, right? What were their personal intimate experiences that made them fill this void that we didn't even know existed, but all of a sudden, you're like, ÒWow, that is a problem.Ó Right? ÒWow, we need to do better.Ó Then you just do. Write a grant, write a Ð I mean like, we just fix it. Yes. Okay. You went to FSU. Now did you go straight from Penn State to FSU? [0:14:47] MT: I did. I went straight from Penn State to FSU. I think now that I'm like, thinking back on our conversation, a part of your question was about how I started doing the friendship and the social interaction part. I think that's actually a good thing to talk about, because I'm working with doctoral students right now who are similar to me where theyÕre like, ÒI just think AAC is awesome.Ó Okay, but like, okay, we need to find a space for you. Like, what's your space within that? Because AAC seems like a small space and it's okay to just think, ÒI'm going to research AAC,Ó but there are really so many smaller spaces where you can really dig in and become an expert in a particular area. [0:15:30] MD: Caregiver coaching for routines based early intervention. Can I put that request out? Like, I need that. I need that, because you know what? Right now, I think I might literally be the only SLP in the Midlands of Columbia. You all, if you're listening and I'm wrong, shoot me a message and tell me. I'm the only one that's doing AAC and EI. I go to present and people look at me like I'm crazy. They're like, ÒAn 18-month-old can't do this.Ó I'm like, ÒDo you want to see the videos where they're telling me what I need to be doing?Ó I have this precious child that told me this week, and I was trying to understand from her thought process, she has a very robust vocabulary. She's level three lamp at 18 months and navigating this sucker like it's nothing. She goes over, tells me, ÒPlay.Ó Tells me, ÒChick.Ó Starts flapping and starts looking around. I'm like, ÒBaby girl, what do you want to play? Come on, mama, tell me. What do you want to play?Ó She's like flapping and goes back and play chick and then comes back to me with a worm. I'm like, ÒOkay.Ó It's a plastic worm, sorry. I should clarify. Oh, my God, the look on her face. It's a plastic worm. Mom. I'm sorry. Santa for Christmas got her this new game to help with her fine motor because we have some brachial plexus stuff going on from complications with delivery. You all, brachial plexus injury is an injury in the innervation of the shoulder and it's compromised her right shoulder down to Ð it almost looks like Torticollis, but it actually impedes how she holds that entire, essentially quadrant of her body. We've been working on like, range of motion, crossing midline like technically PT is, but like, we're interspersing the strategies. But like, she wanted to play the baby chick game where she feeds the worm and she wanted me to imitate her. Then she went to colors and she told me how to play. It was just like Ð I need more of that. Yes, please. Okay, continue. I'm sorry. I got excited. This was great communication. [0:17:29] MT: That's exciting to me, as well. This is what I have just been telling my doctoral students that what I was encouraged to do was to make a list of all the questions I had. Just like, make a list. I still have that list. I called it the, what I wonder list. Then we worked through prioritizing that and thinking about what really mattered. That's what led me down like prioritizing communication as a tool to build relationships with people. [0:17:55] MD: Do you do anything with the DIR Floortime there? Because I know they're in Florida. Stanley Greenspan's outfit. No? [0:18:02] MT: No, I donÕt. [0:18:03] MD: That would be a really good idea for one of your students and collaborate there. Okay. One day I want to go back and get a PhD. We'll just add that to the to-do list. In the meantime, we have to pay for archery lessons. Like, the 10-year-old. That's where our budget is for the Ð [0:18:21] MT: They got horseback riding, so similar. It's so Ð [0:18:24] MD: Oh, itÕs so expensive to have extracurriculars. That's a budget, a line item in the pack Dawson of family line items. Okay. Then let's go. Let's hit the road. Okay. We've got a lot of ground to cover, but can we start with, you have this amazing research lab and it's called AAC Connect Lab. Why did you call it that? I love the history of why people call their labs these things. [0:18:47] MT: I chose that because I feel like one of my main aims is to support connection building, generally. Obviously, we just talked about friendship and social interaction and that's the primary connection I focus on. I don't think that happens in a vacuum. I think about the connections between SLPs and researchers. That's like another connection. That's really important in order to get our research into the hands of people who can use it and make a difference, right? The connection between teachers and parents, right, or SLPs and parents, right? Like all of these connections are going to impact the quality of life of the individual who uses AAC. That's why I named the lab, so that it would be encompassing of all of those different ways of building connections. [0:19:45] MD: I know everybody's lab is different. Is your lab doing intervention in therapy or are they generating research? What does it look like inside the lab? [0:19:55] MT: It's just a research lab. Not doing therapy, although our department, our School of Communication Science and Disorders at FSU is in the process of renovating a space, which we have not come up with a name for quite yet, but we're working on it, that simulates a really awesome preschool space. It is not a preschool, but it will have a big like, motor component, a sensory component, literacy component, like all of these really great things. Then we're hoping to work with the clinical educators in our department and the students in our department to bring programming to that space. I think that is going to be a really cool opportunity for us. [0:20:46] MD: When I was a clinic coordinator at Francis Marion University, our department chair, Dr. Frances Byrne, her focus area is actually early intervention, but not just within the wheelhouse of birth to three, but up to five. We had two preschool rooms embedded within our clinic and they were set up just like that. We had, I mean, down to like the flow of the room like you had your little kidney table or whatever it's called for tabletop activities, which we did great, that was great for the PFD component, like how we engage in pediatric feeding disorders within an early childhood sped classroom. It was so foundational for those children that in their transition process from IFSP to IEP and like accessing language, and like coaching parents through those, the routines of a classroom and making it language rich. It was phenomenal. Although my favorite part, honestly, was the little tricycles that we had and we would ride the tricycles through the labs. I mean, you all got on the tricycles and were like, getting it. We were communicating on our devices like, ÒWatch me. I'm going to beat you.Ó [0:22:01] MT: ThatÕs awesome. [0:22:02] MD: My recommendation to FSU is buy tricycles Ð [0:22:11] MT: Brain break activity for everyone. [0:22:14] MD: Yeah. It really was. I was. We learn through play. That's how you make a deep connection. Love this. Okay. When we're going through here, how is this so vital for individuals with disability across the lifespan, that connection? What does that deep connection open for them as a human? [0:22:37] MT: Yeah. I mean, I think that's a hard question to answer, but it would be a hard question to answer for anyone, right? I mean, when I'm writing up the studies that I do related to friendship and social interaction, I always struggle because I have this idea of what an introduction should be, right? You start with X and then you move on to this and then it's Ð anyway. I always struggle, because the first thing I want to do is a section on why friendship is important. I always type and erase, and type and erase, and type and erase, because why is friendship important to all of us? Like it's a really hard argument. We all agree, right? I don't think anyone would disagree that friendship is an important part of our lives. Yet, being able to articulate why is like, I don't know why. It just is, right? We can say what the research says about that, but I don't feel like that captures really why it's important, right? Certainly, there's research out of psychology that says things like itÕs protective, right? Like you have better health outcomes. You have better mental health outcomes. Research out of education says that if you have good social relationships, your academics improve, right? These things are shown through the research and yet, I don't know. To me, it's not important to work on friendships so that academic skills improve. Although, I like to use that point to sell it to teachers and administrators, that friendship is something they should care about. But to me, friendship is enough of an end. Like it doesn't have to contribute to something else too. It's hard to argue why, but I just feel why. [0:24:23] MD: It's giving it the heart. There is nothing worse than being lonely. When you're lonely, everybody sit there for a second, when you're lonely, think about the time that you're lonely. You're vulnerable. You're at risk. You're insecure. It opens the gates for isolation and depression. All of us at one point in time in our lives have felt those feelings and our feelings are valid, right? Friendship offers the opportunity to spread joy and love and light. [0:24:57] MT: Right. So much of the research shows that people with disabilities in general have access to those experiences, I don't want to say in the same way as everyone else, because I don't think everyone else does it in the same way, first of all. And second of all, I don't think that like our goal is always to make it so that everybody experiences things in the same way. That's not really the goal. But if, like you said, people are telling you, ÒI feel lonely. I wish I had friends.Ó Then we have to listen, right? I think because communication plays such a large role in both developing and maintaining friendship, that people who use AAC are at somewhat of a disadvantage even if they're really good AAC communicators. Like even if we're talking about, ÒI can compose full sentences. I can meet most of my communication needs using AAC.Ó Even then, there are barriers to friendship that exist for them that don't exist for me, because I can use speech. [0:26:10] MD: One thousand percent, yes. We have a trail that we hike as a family and it's a phenomenal trail. It's over in Casey. You all, if you ever come to Columbia or the Midlands part of South Carolina, it's the Casey Trail and the 12,000-year-old park. They found a Woolly Mammoth there, hence the 12,000-year-old park. Out of context that doesn't make sense. But the trail is designed for ADL accessibility. It's very flat. It's very wide. We passed an eye gaze user on the trail. My sons were like, ÒWow.Ó Like they're whispering. They're like, ÒMom, is that like the ones that you use?Ó He was an adult and wrapped and warm, because it was brisk outside. I was like, ÒYes, but mommy does things with little itty-bitty versions.Ó As a mom, there's that barrier of, ÒI want them to ask questions and do it in an uplifting positive way, but I don't want them to cause offense or hurt someone's feelings,Ó right? All the mommies in the room know exactly what I'm talking about, right? My husband has an older special needs brother. Our world is a little more open. [0:27:28] MT: Disability aware. [0:27:30] MD: Yes. We have more disability awareness. We talked about it and they waved high and said hi. Then we went on about our business and we were in the process of shooting pterodactyls, so like we had grand Ð obviously, we had to go back to decimation of pterodactyls to protect Casey and the Woolly Mammoths. I digress. That's when I think of the barriers, especially for pediatrics, is there's a fear there, because it's different. How do we overcome that fear? You gave a beautiful answer. Also, I can see your heart in this like, oh, my God. Just so much love. Why is it important that SLPs think about friendships for their clients across ages and disabilities? I think of it as the next step like, how do we integrate this into our IEPs like, our IFS piece? [0:28:18] MT: I just wrote a paper on this. It is in Perspectives. So, check that out. [0:28:24] MD: What's the title of the paper? [0:28:26] MT: Oh, gosh. You are asking hard questions. I will have to look, but I can try to look fast while I'm talking. Let's see if I can multitask. I don't know if I can. [0:28:37] MD: That's totally fine. We can edit out the time it takes to look, but like, you all, this woman has published like a lot. That's why I was sitting there like, ÒOh, my God. It's that woman who I love, but I can't say her last name.Ó [0:28:51] MT: Well, good. It's a very Americanized version of a French name. As long as you don't think you know French, then you probably are going to say it right. [0:29:01] MD: We were talking this morning about Dawson. Goose said, ÒSometimes I think we should have gone with Lawson, but Bear would never have been able to say the L.Ó I'm like, ÒDo not pick on your brother.Ó He wanted the double L, because his first name is Ryland. I'm like, ÒOkay, I get that. That's fine.Ó [0:29:20] MT: Okay. The paper is called AAC and Friendships: Considerations for SLPs. It was in Perspectives. Yeah. I worked on that with some collaborators. If you search my name, you should be able to find it. We talked about the goal of SLPs developing a friendship mindset. It's hard to always have a research based specific intervention that you're going to do for everything that you want, right, for everything that you want to do as an SLP. Research is just not fast enough to keep up with that. We encourage this friendship mindset where if you're writing goals for an IEP, for example, that you think about, if friendship is my ultimate goal, I'm not going to write in the IEP like, ÒWe'll make one friend.Ó That is not super valuable, right? [0:30:20] MD: Also, that's really sad. [0:30:25] MT: Yes. We donÕt want one friend. I'm not going to write that necessarily, because maybe, I don't have the support from the administration to target friendship if I write the word friendship. Or old SLPs who work with adults will say things like, ÒWell, insurance is not going to fund a friendship goal.Ó But if you think about the factors that contribute to making friends, then you can start to see, ÒOh, I could write a goal for that.Ó Right? Social communication is totally within our scope of practice, right? I could write a goal for social communication and not just social skills that we work on in this like isolation way, but like a goal that actually gets this child that I'm working with engaging with a peer in a natural way, in ways that kids interact with each other. If I can keep that in mind, then I can write a communication goal that has friendship in mind, right? I'm keeping this friendship mindset even while I'm writing a goal that focuses more on expressive language or receptive language or whatever. [0:31:38] MD: I'm trying to think of how to word that goal and what that would look like and that's tough. If you have suggestions here, I'm all open for suggestions. [0:31:50] MT: I do. In that paper, we created a table that goes by age. We have a preschool section in the table, an elementary section in the table, secondary, and adults. A sample goal that demonstrates a friendship mindset, although they're not written in good IEP language so of course, like we would have to take them and make them more specific and measurable and all of those good things. We were not trying to do that. We were giving a broad goal. Then some sample treatment activities, what kind of materials you might use, and then what aspect of friendship development that sample goal would address, right? For example, the preschool sample goal was: student will increase communicative participation within interactions with peers. Of course, you could write that in lots of different ways. The sample treatment activities and materials came directly from another one of my studies where, I will say, the outcomes of my study were not friendship, right? Because friendship is squishy. [0:32:58] MD: I just saw a card from Hallmark that says, Òwe've aged like good wine, but where did the box of chocolate go?Ó It was two 80-year-old biddies in a bikini and they had gotten squishy together. [0:33:10] MT: Perfect. [0:33:13] MD: Sorry, that was a very Ð yes, Hallmark, man, they get me with their cards and their movies. Okay, continue. IÕm so sorry. [0:33:21] MT: What I mean by that is that friendship is hard to measure and our attempts to do it, I think, miss the mark, right? If we just say, ÒWell, how many friends do you have? Let's just count them.Ó That's the way we measure friendship. Well, I mean, I think we could all say that discounts how important my one friend is. Like, that is not right. Okay, so then we try to Ð [0:33:43] MD: That quality. I want quality. [0:33:46] MT: Yes. Yeah. Quality is not necessarily observable, although again, people have tried to do this. I just think we aren't there yet. I would like to work on that. Future research. IÕve got plenty of things in mind. In the studies that I did, I was measuring things like the number of symbolic communicative turns within the interaction, right? How many times did they communicate to each other, the two kids? Again, this is not friendship, but it is something that you won't have friendship without it, right? If you never communicate with a peer, it's going to be hard to make friends. It's that friendship mindset thing, right? If the goal is increasing communicative participation, this is the activity that we did. In my study, it was just looking at storybooks together, which is something that kids do in preschool classrooms. I was trying to make a natural context. Also, storybooks are really nice, because they give you a shared vocabulary. I would love to do more work outside of the storybook area with play and all other things, but storybook is very nice, because it is a structured activity where that vocabulary is going to be similar. We can find characters and topics that both kids are interested in like trucks or Dora the Explorer or whatever characters they're interested in. For me, the most important thing about the intervention study that I'm talking about that I have done is that the two children, one child who uses AAC and one child who doesn't, although I would argue that you could do it with two kids who use AAC, there's no reason that a child's friends have to be kids without disabilities. [0:35:40] MD: Beautiful world. IÕm good. Yes. [0:35:43] MT: But one important thing about that study is that the two children are taught communication skills together. It's not the child with a disability who has to fix their communication as much as it is that the two children have to learn how to communicate together. The peers, like you were saying with your kids walking on the path, they have to know things so that they can interact appropriately with someone. It's similar for these kids in preschool classrooms, right? If they've never interacted with a child with a disability before, then they are going to need to learn some communication and interaction skills in order to make that interaction successful. We work with both kids. We teach them that, it's kind of the way a conversation works around a book, is that you take turns. One person shows their friends something in the book and tells them something about it, and then that person needs to chill and wait and let the other person show something in the book. Those are the only skills we teach. It is preschool so we have to keep it pretty like preschool level, right? We're not teaching anything super complicated. It's show, tell, and wait. Those are like the key words. [0:37:09] MD: I don't know when that's ever fully learned, though, because I know some second graders that the weight piece, oof. [0:37:17] MT: For sure, and especially with the AAC that we're using as a part of the study. We're using an iPad, which is cool, and everyone wants to touch it. So what we've done is take the storybook and take pictures of the entire thing and turn it into basically a communication storybook. It is using visual scene display technology. They're not using traditional grid-based AAC within this interaction, but it's basically like an eBook that has communication built in. It doesn't read the book, because when three-year-olds sit together with each other looking at a book, they don't read it. They look at the pictures and they talk about it and they laugh about it, but they don't actually read it. Yeah. Exactly. It's pre-literacy. They're turning the pages. They're talking about what they see. That's what it's meant to do. They can touch different spots on the screen, and it might say Ð if the book is a little blue truck, it might say, ÒLook at the blue truck.Ó Or, ÒWhat's he doing?Ó Or any kind of normal communication thing that you might say when you're looking at a book. We try to make them really engaging and exciting for them to do together. That is one example going through the goal, the materials, and what you're working on in that. [0:38:42] MD: This is amazing. Okay. I'm just trying to troubleshoot how to replicate that in my head. Sorry, folks. I'm just thinking about how can we replicate that more and create peer interactions for the prior to three? Because once they turn three, normally our little ones that are AAC users or hearing stuff like, they get referred to early childhood special education classrooms, right? Like, we have that natural progression to there, but it's capturing them before that. Folks, if you have Ð do you want to hear a dream? I have a dream. Okay. This is very exciting. It makes me sit up. I want to create an interactive AAC circle time at a public library for toddlers, for the little ones, right? Like that to me would be a phenomenal activity. We have circle time. I cherished those memories as a mom of taking my kids to circle time. I mean, yes, was it difficult to schedule in my work life? Yes, but life is more than work. I have a dear friend who, we became friends because I treated her daughter. She didn't get to do those activities because of the fragility of her daughter. Now she has a typically developing second child and they've been able to do that. She's like, ÒI didn't know what I was missing. I want to create that.Ó If you're listening and you have the collaboration and opportunity to partner with your local library, and you're also an AAC fan like us, maybe let's spit ball this, write a grant, write a proposal and make it happen. Okay. [0:40:44] MT: Yeah. [0:40:44] MD: We speak it into the universe here. We can manifest. That's the word Erin uses. We're manifesting. Okay. [0:40:50] MT: I think that leads into something else that I'm working on. I'm going to keep going with the school stuff because I think a lot of kids make friends at school. It is like the primary place where they spend a lot of time with other kids. However, it is not the only place. I think what you just said for that younger set, right? Like the library, that's a community place where kids might interact with other kids. If it becomes a regular thing, then they might develop a friendship. I have sat and thought about that; where do kids play? Where do they play and interact with other friends? Another branch of my research tree, to use the analogy, is related to playgrounds and how kids who use AAC experience playgrounds. That's in its infancy. I don't have any answers. I actually get a lot of emails from SLPs when they hear that I do that, like, ÒWhat should I do? This is happening.Ó Or like, ÒMy school is doing this. Is that good?Ó I'm like, ÒWe don't know yet.Ó Research is so slow and we want it to be faster. I think playgrounds are a good space. In general, all community spaces are things I want to look at. Like a children's museum. How could we make a children's museum a place that supports communication and engagement for kids who use AAC? I think there's a lot of opportunities out there. [0:42:18] MD: There is, I'm trying to pull it up, something called The Good News by a guy named Tank. They had on here about a Ð oh, my gosh. I'm trying to find it. I told you all, I don't actually follow that many SLPs on my personal feed. I follow a lot of happy good news things on my personal feed in social media and circumference animals. There's a fabulous Instagram page called Round Boys. It's spherical animals that move and fall into fabulous things. One of them was a group of children that created a fundraiser to completely demolish their current playground to make an accessible playground for all. The children that were fundraising were like, ÒTwo of our friends couldn't play with us on the playground. That's not fair to them.Ó They did it for two peers that were in a wheelchair. One of them was an AAC user. I feel like as a society, we need to make a shift that all playgrounds should be accessible. Just period from the get go. I mean, long gone are the days of the hot metallic slides that we all probably sustained second degree burns on in the summertime, but like, yes. Okay, so when that research comes out Ð then I wonder how is language going to look different in an accessible playground versus an inaccessible playground? [0:43:39] MT: Absolutely. What does accessible mean when you're talking about language, right? I think, mostly we think about physical disabilities, so building things like ramps and different stations that are at different heights or whatever, like making things physically accessible, but that's not the only thing that should be a part of that accessibility definition. I've seen at least people who have looked into this for kids with autism. Our playgrounds need to have both spaces where someone can remove themselves from all the sensory stimuli or places where there is more sensory stimuli, like things they can touch or water features are sensory, right, is another area of accessibility to think about. I think communication is something that we don't really think about when we think about playgrounds, because my hypothesis would be that even if a playground is fully physically accessible to someone who uses AAC, that there would still be barriers to communication on that playground. If they can't communicate, then it's hard to engage other people in that play. They might be able to go down the slide, but they're doing it by themselves. [0:45:02] MD: Last summer, was it last summer? It might have been a year and a half ago. I had a young lady on who partnered with a local charity and they created AAC boards for her community playgrounds and like, that's phenomenal. There are preexisting AAC boards that you can order. I know, Talk To Me Technologies has vinyl ones. I don't know if they're latex free or not, especially within the paint. That can be a barrier for some children, because I've worked with plenty of kids that have latex allergies. They can't have certain types of foods, because they actually fall within the same family. They have pre existing boards that you can adhere to the chain link fence. We did that at a clinic that I worked at. We got those boards and put them in every single therapy room in the entire building. They had an outdoor playground, like an outdoor backyard, that was built, just like you described, for seekers and avoiders. We had an autistic volunteer, she's an adult, that actually studied visual arts. She hand-painted one. Working with her, collaborating with her on that thought process, changed my selection of vocabulary when we collaborated, because she could bring a neuro-diverse lens to the table to say, ÒWell, I would prefer this vocabulary because I feel da-da-da-da.Ó I'm like, ÒOkay. Yes.Ó Because we have to listen to their voices. Yes, continue. That's amazing. [0:46:34] MT: I feel like I see lots of those playground boards. I think it's an awesome first step. I also don't think it's really the solution. I mean, like I said, I think it's a start. We don't know what else to do, right, at this point, because people haven't studied this. I'm hopeful that we can find some things that are more in the moment where you don't have to leave the activity that you're doing to go to a board and talk, but we're not there yet. We're not there quite yet. [0:47:02] MD: What if there were placards spaced throughout, like miniature versions that were just like places where you naturally see a kid huddle? Like the top of the slide, or adjacent to the swings, or we have this one thing that makes me nauseous to this day, where you spin the wheel and it makes everybody spin. But I mean like, where a kid's hand would naturally go on a playground feels like to me - you're a genius. I love that idea. [0:47:30] MT: Yes. I really think that that's important. Then thinking about what words do kids actually use in all of these spaces? [0:47:40] MD: ÒGet out of my way.Ó [0:47:41] MT: That's another space for research, right? Like I want to know what kids are really saying in different places on the playground. Where do they actually play with other kids and where do they play by themselves? All of those things I think are ripe for research. Just haven't quite done it yet. [0:48:02] MD: Okay. If I can help in any way, shape or form, or if you want to get my kids to carry a microphone around when they're on a playground, let me know. This is awesome. [0:48:12] MT: That is a plan, someday. [0:48:16] MD: Oh, my God. I'm slightly terrified as to what my Theodore would say with a microphone. [0:48:22] MT: You need lots of kids, so that we get averages instead of specific compilations. Yeah. [0:48:33] MD: Oh, my gosh. Okay. All right, so then how? What, as an SLP right now in the community, can I do to support friendship building, like creating the framework or the possibility for my AAC users? I know you're talking about the research being in its infancy, but what do I do? [0:48:56] MT: Yeah. I mean, I think keeping a depth Ð sorry. Now I'm mincing words. I think understanding what friendship really is and actually keeping that in your mind when you're trying to do peer stuff, if peer stuff is the thing you do, is really important. What I mean by that is not everybody has the exact same definition of what a friendship is, but if we look at the research on the whole, we see people, including people who use AAC, defining friendship in some similar ways. No one would define a single friendship that way, but if we think about generally the concept of friendship, we talk about, ÒWell, we both like each other.Ó That reciprocal liking is like technical terms, right? We both like each other. We would choose to hang out. [0:50:02] MD: We have a shared interest that Ð [0:50:05] MT: Right. We have a shared interest. We have an equal status at some level. I feel like that's one of the hardest ones when we're talking about therapy, because I think that's the one that people forget. There are peer tutoring interventions where I teach a peer to help a child with a disability, which is great, right? We want people to have empathy and to provide support and help. Also, if that's your role, then you're probably not friends. You're something, right? But it's more like, you're a caregiver on some level, you're providing a service. It becomes less equal or less Ð I hate saying equal because I don't think that everyone has to contribute the same thing into a relationship for it to be friendship. I also don't want to say that helping is not a part of friendship, because it is, right? Like we all would say that our friends help us. I think, if the help is one way, then that sets up a certain dynamic. Something that is tricky is thinking about, whatÕs an authentic role that the child who uses AAC can have in whatever I'm setting up, right? I don't want to fake that they have some skill that they can bring, but legitimately, what can be their job in whatever activity I'm setting up so that they have a valued role in the relationship and are not just the person that is being helped? Yeah, that feels pretty important to me. When I look at the body of literature around how we're using peers, it is overwhelmingly as mini teachers or mini SLPs rather than as friends or peers or classmates. The hard part about that is that all of those studies show that they're effective, right? But then we have to think about what they're effective for. What's the outcome that we're measuring? Is that an outcome that leads to friendship or is it not? I don't think there's anything wrong with it if your outcome that you're choosing to work on is not friendship, right? Like not everyone has to do what I do. But if you're doing that, thinking that you are helping kids become friends, I think you're wrong. I think you're mistaken there; you're not actually helping kids become friends. You might be raising their awareness about how to support people with disabilities, right? You might be supporting communication and language development for that child with a disability, but I don't think you're supporting friendship, unless you're considering those things. [0:53:43] MD: Yeah. This triggers a thought. This is spot on. Sorry, there's four different thoughts going through my head. Okay, so we had Morgan Oates on in January about neurodiversity. She's getting her PhD at the Ohio State University with Alison Bean, right? She was talking about how when a neurodiverse peer talks to another neurodiverse peer, they have matched, what was it? It's not minimal pairs. God bless America. That's a phonological process. Give me two seconds. It is double empathy. That's the thought process, double empathy. She talked about how one way they communicate with each other is information dumping. I was like, ÒOh, my God. That is my Goose.Ó My 10-year-old information dumps all historical facts, but that's how he creates friendships. Bless his little heart, he has found two buddies in class that also information dump historical facts. They just thrive in this little trio. Their friendship is based upon information dumping of facts. So I'm wondering, and this gets back to additional branches of like research, if that's how a neurodiverse child builds friendship is by info dumping at each other over a shared topic, but they thrive in this process, are we then looking at their unique fringe vocabulary to make sure that they have access to the French and Indian War? Which I didn't know was as pivotal a moment in American history as it apparently was. Or as my Goose Bear or Boobare Dawson like origami and how you have to fold and create crisp lines. Then there's different types of paper. Then the papers influence the outcome of, is it to sit and be pretty, or is it functional origami, because you can make origami for a purpose aside from looking at? It's just very like Ð theyÕre our children. I love them. One day they're going to listen to these and be like, ÒMom, why did you talk about that?Ó I may or may not also information dump, but this is what I'm thinking, are we sitting back and looking at their unique vocab as it relates to how they could build friendships? That's cool. [0:56:40] MT: Right. I think about how systems could support that. It's tricky, right? Because the more vocabulary you have, the deeper the level, the more organization is needed, the more navigation is needed. It does become tricky, especially with the systems that we have. I keep going back to two things. One, the importance of literacy, right? In the space of like, if I really want to say anything that I can possibly think of in my head, being able to spell is going to make a world of difference. That's one. I do not do literacy work, but I have many lovely colleagues who do. Then Ð [0:57:29] MD: Kelly Farquharson. [0:57:32] MT: Then the other thing is visual scene displays and video visual scene displays, which I also have colleagues who are really working on that in the space of social conversations because they allow for more use of digital pictures. [0:57:52] MD: Wait. What are the words that you're talking about? [0:57:55] MT: A visual scene display. It is just a digital picture with communication hotspots. A video visual scene display is literally a video that pauses sometimes and you can touch different spaces to say different things. The two combined, I think, expand what we traditionally think of as AAC, and I think that's good. I don't think AAC needs to be one thing, and there are so many possibilities out there. I'm digressing a little bit, but in a conversation with a person with aphasia that I met at a speaking thing. His AAC system was the photos app on his phone, the calculator on his phone, right? He was able to communicate with me things that he couldn't say with spoken words, because of those two apps, and that's AAC. I like to expand what we think of as AAC, but visual scene displays as one component of how we communicate can be so powerful in social interactions because we are used to sharing pictures with friends and videos with friends. I think we do as a society now. I think probably always, but now it's so easy to take videos, right? We don't have those huge home video cameras. We can do everything with a teeny little phone, and really all of these AAC systems, dedicated or not, can take pictures. Being able to take a picture of something cool that you did over the weekend, right, and build in communicative hotspots that tell the story of what is there and what you learned, what was fun, in full phrases. It doesn't have to be, but like, then you don't have to generate all of those words. You don't have to find all of them in this thousands, and thousands of words system. Of course, it takes someone programming that. There is a downside, but I think there are some really good benefits to being able to do that and share yourself through pictures in that way. [1:00:25] MD: Okay. I felt a person in the universe question, but I don't have time to program and I can't build to program. Aha, but you actually can pull up the ASHA Superbill for Speech- Language Pathologist and you will find CPT codes for reimbursement for spending an hour with the patient's device and actually programming it. So, if you're under a productivity parameter, which let's be fair, most private practice SLPs have to meet productivity, there is a measurable tool that you can then build for to program that child's device and get reimbursed for your time to show your supervisors that not only is this necessary for the outcomes of this patient, for this child to be able to communicate and engage, but you're also still meeting your productivity chart. That's a real barrier in the world for practitioners that sucks, but it can be overcome if you just know the right tools. ASHA Superbill is right on ASHA, just type in a Google, it's a PDF, they're done. [1:01:39] MT: Perfect. Good. These are the things that, as I'm not practicing SLP, I'm not an expert. [1:01:46] MD: Oh, I got you. I got you. This is great. Okay. One, I have a request. Can you please introduce me to the people that are doing the research on visual scene displays and all of these, like that put the movies in, because I want to know more about that? [1:02:00] MT: Yeah, absolutely. [1:02:01] MD: Okay. Then we're over on time and I have to be respectful of your time, so can we come back and do this again in the fall or like winter? [1:02:11] MT: Absolutely. [1:02:12] MD: This is great. Okay. Then I always Ð can you share your information where people can find you? [1:02:21] MT: Sure. I'm not super active, but the AAC Connect Lab does have a Facebook page. If you just search on Facebook, AAC Connect Lab, you will find that. Then I do have a Twitter, although Twitter is so weird these days, but it is @dr_mctherr, T-H-E-R-R, which is the beginning of my last name. That's an option. You can always search my name and email me at work. I get lots of emails from SLPs, something that many people don't know is that authors can share their work, their published work. If you're having trouble accessing it because you don't have a subscription or that your place of work doesn't have one, feel free to email and we can share that. [1:03:19] MD: Awesome. Okay. Then my last question. If anybody has a little extra love money, that's what my grandma calls it at the end of the month, I say calls it as if she's still living, but I know she's right there. Where would you recommend, they could donate to or is there an organization that you'd like to support? You mentioned the Disabled Athletes of St. Louis, but like, what can they do? [1:03:45] MT: Yeah. Well, we are going to actually have a, FSU puts on a Great Give campaign. It is not open yet. It's like a one day or two-day thing, so I can send it to you, although, actually that might happen before these airs, so we might Ð [1:04:02] MD: But they can at least be ready for it next year. What is it called? [1:04:06] MT: Yeah. This year we are proposing a small fundraiser to support the development of that space that is for, not a preschool, but like preschool type programming and for the development of the outside space related to that. That's something that we are doing. That's the FSU's Great Give. Then you just have to search Communication Science and Disorders. But like you said, Disabled Athletes Sports Association in St. Louis is a great organization. They are not specific to AAC and friendship, but they do really great work and they got me going in this field. That would be a good option, too. [1:04:47] MD: Awesome. Michelle, thank you. Thank you so much for coming on. This was awesome. [1:04:52] MT: It was fun. [1:04:53] MD: Folks, if you're listening, you can find us at First Bite Podcast on Instagram. That is automatically attached to the First Bite Podcast Facebook page, so whatever, normally whatever, unless I screw up the hyperlink, whatever I post on Instagram shows up on the Facebook page. If it doesn't, you can guarantee that I posted it and I screwed it up somehow. Check us out there. I'm always so grateful when you get on the First Bite Apple page and give us a review after you listen to an episode. We love your kind words. Thank you for being with us on our nerdy SLP adventures and journey to expedite research to practice. [END OF INTERVIEW] [1:05:40] ANNOUNCER: Feeding matters, guides system-wide changes by uniting caregivers, professionals and community partners under the Pediatric Feeding Disorder Alliance. What is this Alliance? The Alliance is an open access collaborative community, focused on achieving strategic goals within three focus areas, education, advocacy and research. Who is the Alliance? It's you. The Alliance is open to any person passionate about improving care for children with a pediatric feeding disorder. To date, 187 professionals, caregivers and partners have joined the alliance. You can join today by visiting the Feeding Matters website at www.feedingmatters.org. Click on the PFD Alliance tab and sign up today. Change is possible when we work together. [1:06:32] MD: That's a wrap folks. Once again, thank you for listening to First Bite: Fed, Fun and Functional. I'm your humble, but yet, sassy host, Michelle Dawson, the All-Things PFDs SLP. This podcast is part of a course offered for continuing education through SpeechTherapyPD.com. Please check out the website if you'd like to learn more about CEU opportunities for this episode, as well as the ones that are archived. As always, remember, feed your mind, feed your soul, be kind and feed those babies. [DISCLOSURE] [1:07:18] MD: Hey, so it's Michelle Dawson here. I need to lay out my disclosure statements. If you ever wondered how bad my ADD, ADHD and lack of sleep, Monday through Monday, actually as well, here you go. These are my non-financial disclosure statements. I volunteer with Feeding Matters. I'm a former Treasurer with the Council of State Association Presidents and a past president with the South Carolina Speech-Language-Hearing Association. I am a current member of both ASHA and SCSHA. For this year for 2021, I volunteered for the Pediatric Feeding Disorder Planning Committee for the ASHA 2021 Convention. My financial disclosures. All right, so I receive compensation for First Bite presentations, as well as Talking Teletherapy and Understanding Dysphagia from SpeechTherapyPD.com. I also receive royalties from SpeechTherapyPD.com for ongoing webinars that I have on their website, as well as compensation from PESI for a lecture course and webinar that I have on their website, as well. I am coordinator for clinical education and clinical assistant professor for the Masters of Speech-Language Pathology Program at Francis Marion University in Florence, South Carolina, for which I receive an annual salary. I also received royalties from the sale of my book, Chasing the Swallow: Truth, Science and Hope for Pediatric Feeding and Swallowing Disorders that I self-published and is available on Amazon. I do receive royalties from the accompanying 13 and a half hours CEU for the book from SpeechTherapyPD.com. Yeah. I stay pretty busy. Those are my financial and non-financial disclosures. If you ever have any questions, please feel free to reach out. All right. Thanks, you all. Bye. [1:09:27] ANNOUNCER: The views and opinions expressed in today's podcast do not reflect the organizations associated with the speakers and are their views and opinions solely. [END]